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GENetics
Story
In 1975, my beautiful little sister Genevieve arrived in the world. Three years later we were told that she had Cystic Fibrosis and would only live until the age of 15. She defied those statistics and in June 2010, at the age of 35, she had a double lung transplant. We shared another fabulous13 months with her before she developed post transplant complications and died in August 2011.
In 1994, our son Chris arrived in the world. He was diagnosed with Cystic Fibrosis 6 weeks later. Chris is now 18 and will walk in our team "The GENetics" to help raise funds for research into CF. He is joined by his friend Molly, his sister Steph, his aunty Joanne, his grandmother Jennifer and me (his mum Suzanne).
Together we walk, in memory of Gen, for our other CF friends living and departed and for all the lung transplant donors and their families who bless the CF community with their gifts of life.
Since first setting up GENetics, we have been joined by another seven teams willing to participate in the walk. It is overwhelming, heartwarming and exciting to see the wonderful support given to our cause.
We are joined by:
- Team Genevieve (Kim and Mark Jasper, Sally and Greg Mason, Pietro Sciotto and Susan Sheppard)
- GENerate (Liz and Lou Muller and Bridget Wolhuter)
- inGENuity (Rhonda and Bryce Hosken, Carole, Hannah and Samuel Poustie, and Kelly Ryan)
- GEN'n'Tonic (Amanda Hobbs, Debbie, Hannah and Kate Varnam, Helen Coldwell and Maree Sipus)
- Cousin Genevieve (Rebecca Hannon, Fiona Hannon, Prue Berry, Ellen Hughes, Lisa Borg)
- BronchoGEN (Phil Emery, Viola Pythas, Irene Kanakis, Chrissa Christou, Fran Kelly)
- GENtamycin (Amanda Loh, Cheryl Whyte, Kevin McAsey)
- oxyGEN (Nicole Joseph, Sharon Danaher, Alison Killick, Jane Herbst, Monica Heron and Sarah Lincoln)
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Activity
Murdoch Children's Research Institute
Murdoch Children's Research Institute is the preeminent child health research institute in Australia, and is recognised globally for its child health discoveries. Researchers at the Institute work side-by-side with doctors and nurses from our campus partners The Royal Children's Hospital and the University of Melbourne's Department of Paediatrics. This provides our researchers with much greater interaction with patients for research and gives us the ability to more quickly translate research discoveries into practical treatments for children.
Our team of 1,900 researchers is focused on combating emerging conditions affecting child health like allergy, diabetes and obesity, as well as finding answers to unsolved problems like cancer and genetic conditions. We bring together large multi-disciplinary teams to work on problems together. Our research priorities include: Adolescents; Allergies & autoimmune conditions; Cancer; Brain & mind development; Genomics & personalised medicine and Healthcare innovation.
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